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Title	Evaluation of two health related quality of life instruments for use with older African Americans with diabetes mellitus
Author	Magwood, Gayenell Smith
Date	2006
Affiliation/College	College of Graduate Studies College of Nursing
Extent	198 leaves ill.; 29 cm
Source	WK 810 M213 2006
Subject.MeSH	Quality of Life--in old age Diabetes Mellitus--in old age Minority Groups Academic Dissertations
Collection	MUSC Theses and Dissertations
Contributing Institution	Waring Historical Library (MUSC)
Rights	Copyright is held by the author.
Language	English
Type	Text
Format	application/pdf
Media Type	Manuscripts
Resource Identifier	mtd2006_magwood_gs
Abstract	The purpose of this methodological qualitative study was to examine sources of problems in comprehension, response categories and within-language cultural variations that may influence validity and reliability of two existing diabetes-specific Health Related Quality of Life (HRQOL) instruments, The Audit of Diabetes Dependent Quality of Life (ADDQoL) survey and the Diabetes Quality of Life Briefs Clinical Inventory (DQOL-B). Using cognitive interview (CI) methods, semi-structured interviews, consisting of survey questionnaires and verbal probes, were conducted with a purposive sample of 15 older African American adults who were diagnosed with type 2 diabetes. Each respondent was interviewed twice for a total of 30 interviews. Sixty percent were high school graduates. Most had multiple comorbidities (80%) and rated their health as good (67%). Health literacy results indicated marginal levels of health literacy. Interview data showed most observed problems with the HRQOL questionnaires were related to comprehension difficulties. This study provided evidence that unfamiliar language and meaning of specific words, uncertainty as to what was being asked with some questions or instructions, and confusing or not applicable response options led to numerous response errors on both instruments. Another important theme identified was this cohort did not distinguish between certain functional limitations and/or level of satisfaction being solely associated with their chronic illness or the aging process. This study has implications for further research on the appropriateness of established and new instruments. Cognitive interviewing is resource intensive, requiring time, specialized skill, and added cost to a project. Despite these limitations, the data from this study, though small, has provided a needed systematic approach to investigating respondents’ cognitive processing of an important construct closely associated with chronic illness. Furthermore, this study has used a systematic framework to identify problems and analyze the cognitive interview data.

Evaluation of two health related quality of life instruments for use with older African Americans with diabetes mellitus

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